August 25, 2017 at 11:52PM

In May, my doctor referred me to a specialist to get assessed for Ehlers-Danlo/hypermobility. I made the appointment right away, first available, September 5. Clinic called today with bad news- the doctor is on indefinite medical leave. I can call back in the Spring to see if she’s taking appointments again. They don’t know any other specialists in the cities for referral, and the physical therapist they used to recommend has moved to New York. I’m at a loss. Next month it will be five years since I set off the plantar fasciitis flare that started this whole thing. Five years that I’ve been in pain every day from one part of my skeleton or another. I don’t know if there’s anywhere to go from here.

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